A good friend of mine and I took Kasey to the Mall the other day. I could tell Kasey was having a bad day. She has been clingy and wanted to be carried everywhere. She looked at me and said, "Mommy, I want new legs." How do you respond to something like that? It brought tears to our eyes... I am never certain if I am making the right decisions for her and that bothers me daily. Kasey’s Rheumatologist now has concerns about her liver function which will require continued tests and medication adjustments. The stress comes and goes but the pain of having a child with a chronic medical problem never leaves me. I wonder if she will ever know what it is like to not hurt. - Deb
Sunday, March 16, 2008
"Mommy, I want new legs"
A good friend of mine and I took Kasey to the Mall the other day. I could tell Kasey was having a bad day. She has been clingy and wanted to be carried everywhere. She looked at me and said, "Mommy, I want new legs." How do you respond to something like that? It brought tears to our eyes... I am never certain if I am making the right decisions for her and that bothers me daily. Kasey’s Rheumatologist now has concerns about her liver function which will require continued tests and medication adjustments. The stress comes and goes but the pain of having a child with a chronic medical problem never leaves me. I wonder if she will ever know what it is like to not hurt. - Deb
Subscribe to:
Post Comments (Atom)
4 comments:
my heart is breaking deb :( i know it must be so hard for you to remain strong for her, but i hope you know what an amazing and positive force you are for kasey.
i wish i could be there for the walk this year! keep me posted on all the progress!!
LOVE YOU ALL.
I truly cannot imagine the burden this has put on you all. We will pray for improvement in Kasey's condition to a level where she can be a happy, pain free kid all the time. We look forward to seeing her smile on the walk coming up!
I truly cannot imagine the burden this has put on you all. We will pray for improvement in Kasey's condition to a level where she can be a happy, pain free kid all the time. We look forward to seeing her smile on the walk coming up!
I can not tell you how moved I was when I found out about Kasey.I wrote a song for her that night. I think about you guys all the time.My love is with you!
Post a Comment